Sunday, July 4, 2010 8:05 PM, BST
We had a good night with only waking for one screaming fit which subsided when he was allowed his next lot of painkillers. The day has been pretty hit and miss with him being very subdued but the it is the weekend so we have managed to be pretty much left alone from medical bits we are having problems every time his painkillers run out but it does subside soon after he has the painkillers.Oliver is now testing positive for C Diff. This is generally a hospital acquired infection however once you have had it once reoccurance is common when on high strength antibiotics (which Oliver is on.) The last time Oliver caught C diff we caught it from a different hospital, it developed into colitis, sepsis, endocarditis and caused a cardiac arrest (as well as 4 1/2 months in hospital.) This time it has been caught early so fingers crossed things will be fine. On the plus side Oliver has just managed to sit up on his own!!! For the first time since the op so he must be feeling better, maybe it is related to another trip to the canteen with Grandad and his sisters or maybe the trip to the roof top play area where he did not want to participate and instead watched - his sisters however loved it and Millie found herself a boyfriend in the canteen!The plan for tomorrow is to see the surgeons and hopefully see if it is the tube that is blocked I will know more in the morning but as far as I am aware they will be removing the current jejunostomy and gastrostomy and replacing the gastrostomy (they can not replace the jejunostomy due to fear of breaking the internal stitches.) If it is not the tube that is broken then we will be in a worse position than what we came in with as we will have no way to feed him enterally and TPN will be our only route forward.
http://www.caringbridge.org/visit/oliverking
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