Thursday, July 8, 2010 12:17 AM, BST
Just a quick update tonight as I need my bed and it is already stupid o clock. Oliver had a great morning (I did not due to a c diff episode in MY bed - which he found amusing!) and we thought we would be able to get everything in place to discharge him however he has developed a Staphylococcal Infection hopefully this won't delay our plans by to much however this is the same bug as meningitis and so we are not taking any risks until we know all of the details. At present they do not know where the infection is, hopefully it isn't in the port a cath or his blood stream either way it cannot be treated whilst he has c diff. At the moment it does not seem to be affecting him to much except that his HB levels have dropped to 7 - we are getting closer and closer to transfusion level but that is not a major disaster and we are back on Sytron now which will help maintain his levels in the future. We are also back on full feeds with no maintenance fluids!!! - They are going in very slowly over 24 hours however the main thing is they are going in and the leak appears to be reducing.Oliver has been so good today that I managed to take him out of the hospital briefly to buy some new clothes (essential due to the c diff and being stranded without a washing machine) and some bubbles which were essential. When we got back to the ward we were enjoying a cuddle when all of a sudden he sat up looked confused and asked for his bubbles and so we have had a lot of fun popping them and daddy was able to come and see us this evening - tomorrow we have the girls and are planning to try and escape again as i have heard a rumour about a park and ducks.....
http://www.caringbridge.org/visit/oliverking/
Wednesday, 7 July 2010
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So glad that it sounds like you are on your way out of there! You and Oliver are amazing and i'm so glad you shared your blog address!
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